As many of you know, my 2 year old son, Nicholas has
Down Syndrome, and there are a several ways that everyone can be involved and
embrace an opportunity...
First - There are many things in my list of what not to say, including the pitiful face and expression "I'm sorry" -but I want to focus on "What to say" - which would be - "How can I
help?" Whether your friend has just learned of the diagnosis for their child, or
you have a new friend with a diagnosis - you can never go
wrong with "Is there anything I can do to help you in this situation, or during
this time?" Or if you see a family at the store, a restaurant, etc.
- do you need help carrying your tray? Can I help you with that bag, etc. -
step out of your comfort zone slightly and your gesture will most likely be met
with thankfulness and gratitude.
Second - pray that you will be a blessing to an individual,
child or adult, or family with a situation involving special needs or
developmental delays. Pray that you will show courage, strength, and wisdom
when approaching a situation where you are not aware of all of the attributing
factors, and that you will somehow be a light for them at
that moment.
Third - get involved - talk to your children about how God made
us all uniquely important, and different for that matter. Be open to
introducing your pre-school children to other children with delays - go out of
your way to introduce yourself and your child at the play date, museum, etc.
You will set the example for your child, and they will so often follow our cues. When your child asks "Why does that boy have braces on his feet" or "Why does she have a walker" - it is not hard to say - "That sweet boy needs help to walk, just like you and I do everyday - he needs help to do those things, and his braces help him walk". Anytime our oldest daughter starts to inquire about the services or equipment that we have in place for Nicholas, I always tell her - "Nicholas needs help to do this, but if we are patient with him and encourage him, he will be able to do all of the same things you can do, it just might take him a little longer to do it". Children have such a sweet innocence about them, and I am certainly not going to crush that with an ill-faded remark that will begin to jade their spirit and attitude towards someone who develops differently than they do.
1. Spread the Word to end the Word - take the pledge to end the
use of the "R" word - www.spreadtheword.org;
Ida mentioned this - it is not acceptable any longer to use this word to
describe yourself or another individual in any circumstance. This word is
hurtful and has a very negative connotation. If you hear someone use the word,
take the opportunity to share the pledge and encourage them to find another way
to express themselves or their situation.
2. Down Syndrome Network Annual Buddy Walk - held every year in
October, all are welcome - local chapters sponsor each walk - local chapter -
DSN of Greater Greensboro - www.team-up.org;
funds raised go to support local families with financial hardships due to
medical procedures or conditions, in addition to sponsoring families for
services needed such as speech therapy, physical therapy, etc. and awareness
and support
3. Special Olympics of North Carolina - get involved as a
sponsor, mentor, coach, fan, and in many other ways - www.sonc.net
4. Peacehaven Community Farm - volunteer workdays every Saturday
spring through fall for families regardless of ability and age. Peacehaven
is a non-profit that serves people with intellectual disabilities, and
volunteer workdays are a great way to interact and get to know the farmers who
tend the crops there - www.peacehavenfarm.org
5. Arc Barks - special treats made by special hands - dog treats
are made by bakers who have intellectual and developing disabilities. Stop by
their store front Mon-Friday from 9am-2pm to participate in the baking, and to
meet the volunteers - 2823-C Spring Garden St - G'boro. I took the kids
here a few weeks ago and we had a blast - everyone was so nice and the kids
loved it - a great way to open up a conversation with your little ones about
special needs and embracing others with differences - www.arcbarks.com
I hope this helps - thank you for taking the time to read and
for your continued prayers and support!
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